Claritin helped my dysautonomia symptoms. I could only tolerate 1/4 of a
tablet, but I was finally able to shower standing up instead of taking a
bath. Other side effects got the best of me, and I couldn’t keep taking it.
@jendays247 You may want to check into Gastrocrom (or Ketotifen, outside of
the U.S.). It is a mast cell stabilizer. It may be able to get your mast
cells calm enough to tolerate an H1 and H2 antagonist. We can become more
and more sensitive over time, so the sooner, the better for most us us.
Hang in, my friend. 🙂 Diana
@jendays247 I am with you there, my friend! I think that slowing down some
of the mast cells is one of the steps we need to do to start to close the
BBB. IMHO, we then need to get on top of some of our inflammatory cytokines
and return our vagus nerve function. I think we can get somewhere, then! 🙂
May I make a suggestion filming wise…I find your videos a little on the
quite side. When I did videos on iMovie and there was an option to increase
volume before uploading.
@PrettyIll1 I have become more and more sensitive over time. I figured it
was because my BBB was WIDE OPEN! I didn’t think of stabilizing the mast
cells to help with sensitivity; I just thought of closing that barrier that
should not be so permeable!
Claritin helped my dysautonomia symptoms. I could only tolerate 1/4 of a
tablet, but I was finally able to shower standing up instead of taking a
bath. Other side effects got the best of me, and I couldn’t keep taking it.
@jendays247 You may want to check into Gastrocrom (or Ketotifen, outside of
the U.S.). It is a mast cell stabilizer. It may be able to get your mast
cells calm enough to tolerate an H1 and H2 antagonist. We can become more
and more sensitive over time, so the sooner, the better for most us us.
Hang in, my friend. 🙂 Diana
Just found this video, thanks for posting, in severe pain from shunt and
looking for answers, this helped a lot!
@jendays247 I am with you there, my friend! I think that slowing down some
of the mast cells is one of the steps we need to do to start to close the
BBB. IMHO, we then need to get on top of some of our inflammatory cytokines
and return our vagus nerve function. I think we can get somewhere, then! 🙂
May I make a suggestion filming wise…I find your videos a little on the
quite side. When I did videos on iMovie and there was an option to increase
volume before uploading.
Sending hugs and lots of positive thoughts your way! 😉
@PrettyIll1 I have become more and more sensitive over time. I figured it
was because my BBB was WIDE OPEN! I didn’t think of stabilizing the mast
cells to help with sensitivity; I just thought of closing that barrier that
should not be so permeable!